They are tiny and fragile, yet courageous and brave, and one of the most amazing stories anyone can be part of. But if you’re a parent, the NICU journey can be very overwhelming and profoundly emotional. The time spent in the Neonatal Intensive Care is something parents never forget. No matter how long the journey was or how medically complicated it became, the emotional aspects can be life altering with the memories becoming defining moments in their lives.
The NICU can spark emotions that parents never knew existed, emotions that are so intense that only those who have been through it can truly understand. With all the uncertainty a NICU stay brings, it is difficult to actual take time to celebrate. But it’s important to acknowledge the journey, the emotions, the accomplishments, the milestones, and celebrate them all.
The NICU Journey Bead Program is a family support based program that serves as a connection between parents, their baby, and their healthcare team. It’s the ONLY NICU specific bead program and the first of it’s kind where the focus is on the celebration of milestones, growth progression, and the parent experience.
The Journey Bead Program uses special custom hand-made glass Murano Beads as a tangible way for parents to record and remember their baby’s story. Each handcrafted bead tells a personal story of strength, courage, hope, and healing. This program offers encouragement and inspiration while celebrating and documenting each new step. It’s a way to recognize the emotions, remember the milestones, and reflect upon the trials and triumphs that make up a NICU journey.
Upon enrollment, parents will receive a special Journey Bead folder, a fold-out keepsake bead guide, and a leather storyline lariat along with the Signature Footprint Bead to hang at their baby’s bedside.
Colorful customized beads, each representing their baby’s unique and special story will be given and added to the lariat as their NICU journey continues. Once their baby graduates from the NICU, they will be able to wear their necklace home as a badge of pride and a keepsake; remembering every milestone, every little step their baby made on this journey. Their baby’s story will be recorded, and it will be remembered in a very special and meaningful way.
The New Bedside Journey Bead program comes inclusive with 20 different glass beads, each representing a milestone. The first bead in the series is a hand-made glass caterpillar and the final graduation bead is a beautiful glass butterfly.
The Journey Bead Program is a family support based program which serves as a connection between parents, their baby, and their healthcare team. It gives parents an opportunity to document their story and celebrate the milestones all while understanding their baby's needs as they grow and develop in the NICU.
FOR THE NICU TEAM
FOR THE PARENTS
To learn more about starting the Journey Bead Program in your NICU, to receive information on how your non-profit, family support program, family advisor council, or organization can begin the bedside program, or to learn about exciting corporate sponsorship opportunities, please contact:
To view the NICU Journey Bead Program in news in area Hospitals: